Burden or Blessing?

My husband and I have entered a new season in life and I have been journaling it on my personal blogsite (www.plantinggardens.blogspot.com).  This was yesterday’s entry and through it was relevant to share with you.  I hope you enjoy it.
Burden or Blessing…
Back again…
Ken asked today if I was giving serious thought to those Pre-Mobile Home Renovation Pre-Nups. I sneered at him. This was after he hit me on the head with a flying wooden sword that he had just ripped from the wall. And that was after disassembling the bathtub that I’m certain had not been cleaned for well over 38 years. And that was after I fell asleep in the car while I waited for him in the Wal-Mart parking lot, only to be left to dream about washing paneled walls and then to suddenly be woken from a nightmare, thinking that Ken, getting back into the car was the wall falling on top of me that I had been washing in me dreams (at least I think it was in my dreams…).

It’s not that bad, but I don’t think I’ve ever sweated that much, not even running cross-country in high school (ah yes, those were the days…). Just what you wanted to hear!!!

We are busy with the guest room – pulled up carpets, knocked down the closet walls.

The Structure, in its entirety got a new facelift outside when it was power washed for two hours today. That’s how long it took to give it a bath.

We ordered windows today – double paned, white vinyl, 95% UV protection with a 87% energy savings from temperatures in and out (I sound like a guy describing his hot rod). I’m excited (did I say that?!). NEW WINDOWS! You have to see the old to appreciate the new.

Yesterday, while Ken was talking with different guys about different things about doing different work on different projects, I was out pruning roses. Oh – before I forget – I smelled one! It was the most wonderful thing!!! Some of you know that part of PD is losing your sense of smell. Mine’s usually absent but yesterday it was like a ‘What was that?!?’ moment. Then I realized - it was the rose in front of me and it smelled as wonderful as it was beautiful! I haven’t smelled a rose for so long and it was a gift!

Anyhow, as I was basking in the fragrance, LaurieKay, the neighbor I told you about, came out with her granddaughter Isabella. Isabella is 3 months and gave me the biggest smile that warmed my heart. Then she spit up. A lot. (However, that wasn’t what I was going to tell you.)

The side of LaurieKay’s face was all bruised. She had three teeth pulled last Wednesday. No anesthesia, mind you. She was going to have five pulled but couldn’t stand the pain any longer. She has no insurance (many of us can relate, huh?). While she shared that they also found a tumor which they told her they are pretty sure is cancerous, my hand started shaking really bad and she kept looking down at it. Though it was offending me, instead of cutting it off, I stuck it in my pocket and explained why it was acting obnoxious. She looked at me, stunned, in silence for a few seconds and then this is what she said…

“Aren’t we blessed.”

Then I looked at her in silence for a few seconds.  Then she went on to explain that she had Crones Disease and diabetes.

“We all have something, don’t we?” she added.

It was her ‘aren’t we blessed’ that stuck with me all day.

You know what?  We are. When God has allowed certain circumstances and issues to become a part of our lives – a disease, an illness, a wayward child, a broken relationship, the loss of a loved one – we are blessed. We have been chosen to bear something that for some reason He has decided it is best for us to bear.

Maybe it’s to take us deeper into Him. To rely and depend on Him alone so that He truly becomes our all – in all.

Maybe it’s to make us more compassionate. To be given a sentence of a terminal illness, a chronic disease – often causes the bearer to look at others in a more compassionate way, as their understanding of pain and suffering has increased.

Maybe it’s to make us laugh. They say a great sense of humor is often born through a great deal of pain. Some of the funniest people I know are the ones that have been through the toughest times. They have found that God is their joy and laughter truly is the best medicine.

I believe what LaurieKay said is true. It is a blessing to suffer, although I’ll be the first to admit that I do not always act as if I am being blessed. But when I’m in my right mind (no comments), focused on His grace and goodness and when I’m trusting in His provision through my day, I am blessed. Blessed to have been chosen to bear what others weren’t chosen to bear, chosen to be able to understand more deeply what some never will. I am blessed to have been taken deeper into Him through pain and sorrow through the circumstances in my life and blessed with the gift of being able to laugh at the simplest things.  I am not bragging and don’t mean to sound as if I am.  Would I choose this blessing?  I highly doubt I would have stood in that line of freebies!  But looking back at what I’ve learned, the things God has allowed me to experience because of PD and the wonderful people I’ve met and have the privilege of witnessing to and encouraging… then yes.  I would have stretched out my hand to God, in trust, and said thank you for trusting me.

I hope that you find the next tough lesson, trial, or circumstance in your life to truly be a blessing, chosen just for you. And when you think of it, please pray LaurieKay’s results are negative. She’s ready to meet her Lord, but she really likes being able to watch that little granddaughter of hers every day.

Sherri Woodbridge | 10.09.08 | Daily Life, Inspirational, , , , , | No Comments |

Dancing the Parkie-Polka

It’s been known for a while that singing for a PD patient is not only great therapy emotionally, but helps strengthens the vocal cords, giving the patient better volume while speaking. Now there’s evidence that dancing has proven to be great therapy.

In an article sent out by the NWPF (Northwest Parkinson’s Foundation), Michael Lieb, a sufferer with the disease admits that dancing has “…been a source of great inspiration and a source of hope.”

He says that he has been given “the upper hand” (or could it be said ‘foot’?!) in his fight with PD. He has found great inspiration and hope in getting his feet off the ground and in step with the beat.

According to the article, dancing “may even be more beneficial than regular exercise because music stimulates parts of the brain affected by Parkinson’s disease, and being together forms and important sense of community.”

Mayo Clinic researchers reported that social dancing helps to reduce stress, increase energy, improve strength, and increase muscle tone and coordination.

Parkinson’s patients struggle with various physical conditions associated with the disease. The National Heart, Lung and Blood Institute (NHLBI) says that dancing can lower your risk of coronary heart disease, decrease blood pressure, help you manage your weight, and strengthen the bones of your legs and hips.

The New England Journal of Medicine found that dancing can reduce the risk of Alzheimer’s disease and other forms of dementia in the elderly and it was found that dancing was the only physical activity out of 11 that was associated with a lower risk of dementia, most likely because it engages brain, as well as physical activity.

Dancing has many benefits on brain ‘health’. It increases blood flow to the brain. It creates an atmosphere for socializing which reduces stress, depression, and the feeling of loneliness. It requires the memorization of steps and partnering with someone, providing mental challenges for a healthy brain. Studies have proven that dance may even be more beneficial than regular exercise because music stimulates parts of the brain affected by Parkinson’s disease, and being together forms an important sense of community, as stated above.

After twelve weeks in the class that Lieb participates in, other participants said they didn’t use their walkers much anymore and Lieb stated that dancing has enabled him to perform movements that he didn’t think were possible for him, even before he was diagnosed with Parkinson’s. He feels he’s gained greater flexibility, balance, and a new outlook on life.

Experts believe that as long as dancing is done safely, it certainly can do no harm. So, what are you waiting for? Grab those dancin’ shoes, a partner, put on that favorite ‘record’ and start swingin’!

Sherri Woodbridge | 10.07.08 | Uncategorized, , , , , , | No Comments |

Northwest Movement Disorder / Neurologist Recommendation - Dr. Anthony Santiago

I’d like to recommend Dr Anthony Santiago. He is both a Neurologist and Movement Disorder Specialist practicing in Washington, inthe Liberty Lake area. He diagnosed me with Parkinsonism several years ago. He tested me and then diagnosed me for over 45 minutes. He had my records from all the doctors I had seen previously and it seemed as we were talking that in some aspects of my medical history he knew me better than myself. Together with my wife, we really appreciated the thoroughness and patience he displayed while together with us. I wouldn’t hesitate to recommend him to anyone looking for a neurologist.
Tony Mack

Post note: Thank you, Mr. Mack for your recommendation. I would have to agree with you, as my neurologist is also Dr. Santiago and although not an expert in neurologists, I’d say he has to be the best!

Sherri Woodbridge | 10.03.08 | Resources, , , , , | No Comments |

October–One of My Favorite Months!

Here in east Tennessee the weather has already cooled down, just a bit for me to get excited about the new season in the hills of this place I call home. You have probably heard me say that I think east Tennessee is one of the most beautiful places in the world (in my limited world traveling, you must know this is a purely biased statement!). We live here among some hills or maybe you could call them mountains, and we are close to the Smokey Mountains and the Appalachian Mountains; there are four or more beautiful lakes within an hour of my house; and God’s beauty is abundant in the surrounding valleys.

The other reason I like October is that it is the month my daughter was born. It always reminds me how blessed I am to be entrusted with her life for a short time and she always makes life interesting. Right now, she is in the final weeks of her volleyball schedule, and volleyball is one of my favorite sports that I have ever played. We will be busy with games and tournaments in the next few weeks, and then at the end of the month we will celebrate her 15th birthday. Maybe I’ll make her wait until Nov. 1 to get her driving permit so October will remain a good month. Sure, right!

The colors in the trees, the bright hues of pumpkins and scarecrows all contribute to making October so special. Did I tell you Orange is my favorite color? The crisp fall air and surrounding beauty seem to invigorate my soul! God certainly is the master in providing us changing seasons to enjoy.

The only other significant landmark in my life occurring in October is that 6 years ago, I made my first visit to a neurologist for some physical problems I was having. I had just turned 40 two months before and life was good by anyone else’s standards. I am grateful my diagnosis of Parkinson’s disease actually came in November and not October, so that at least my favorite month is not scarred by that. Halloween is also this month….not that I ever enjoyed the dressing up, but I love getting FREE chocolate!

I hope you have a great month and will enjoy God’s special blessings this time of year. I found this link to this guy’s photography of the area around east Tennessee..I thought you might enjoy it… http://appalachiantreks.blogspot.com

Ok, I’m off to breath in some October air…..ahhhhhh!

Judy Hensley
10/3/08

Judy Hensley | 10.02.08 | Inspirational, , , , , | No Comments |

LA NEUROLOGÍA DE TEVA LANZA PACIENTE DE LA ENFERMEDAD DE S A PARKINSON ESPAÑOL’ Y WEB SITE DE CAREGIVER

Kansas City, MES (sept. 29, 2008) –

En el reconocimiento de Hispanic Heritage Month, Teva Neuroscience, Inc., vendedores del una vez que-diariamente ® de la droga AZILECT de la enfermedad de Parkinson (paladio) (tabletas del rasagiline), hoy anunciado el lanzamiento de la versión española de su Web site del recurso del paciente y del caregiver, azilect.com/espanol. El Web site español fue creado para proporcionar la información y recursos importantes a los miembros de la comunidad hispánica, viviendo en los E.E.U.U., que son afectados por el paladio, un desorden degenerativo relativo a la edad del cerebro.

“Desafortunadamente, no hay muchos de los recursos para los pacientes de habla hispana que se ocupan de la enfermedad de Parkinson,” dijo a Dr. Ramon L. Rodriguez, director de servicios clínicos en la universidad de los desórdenes del movimiento de la Florida se centra. “Aun cuando no hay curación para Parkinson, es importante que los pacientes aprendan cómo vivir bien con una combinación de las actividades y de los tratamientos que pueden ayudar a controlar los síntomas de la enfermedad.”

El Web site español, azilect.com/espanol, es un recurso comprensivo que proporciona la información importante para ayudar a pacientes y a las familias con los efectos físicos y emocionales del paladio. Los visitantes de habla hispana podrán tener acceso a una amplia gama de la informació y de los recursos, incluyendo:
• Las muestras básicas de las opciones de la información y del tratamiento
• De la enfermedad y los síntomas de la enfermedad
• Inclinan en vivir bien con una combinación del tratamiento, actividades, y apoyan las hojas de trabajo
• Downloadable y los acoplamientos a la información otra de
• Caregiver de los recursos

Además, los visitantes tendrán acceso a una versión downloadable “de la guía recientemente lanzada del recurso del adelante de Hacia”. La guía fácil de utilizar es una herramienta útil que ayuda a la gente afectada por el paladio para entender más sobre la enfermedad, aprende cómo vivir bien a pesar de la diagnosis, e investiga varias opciones del tratamiento.

“Estamos satisfechos traer estos recursos muy necesarios a la comunidad de habla hispana que vive en los E.E.U.U.,” dijo a encargado de producto de la neurología de Teva, Mike Sheehy. “Creemos que es importante proporcionar los materiales de la Español-lengua e información que ayuda a poblar maneje las enfermedades, tales como paladio, a esta comunidad importante y cada vez mayor.”

La neurología de Teva se establece jefatura en Kansas City, MES. Para la información adicional sobre los recursos españoles de Teva para el paladio o AZILECT, visita azilect.com/espanol.

Sherri Woodbridge | 09.29.08 | Uncategorized | No Comments |

TEVA NEUROSCIENCE LAUNCHES SPANISH PARKINSON’S DISEASE

The following article was sent to to us this evening. Thank you to Courtney Fadler of Fleishman-Hillard for keeping us posted!!!

Kansas City, MO (Sep. 29, 2008) — In recognition of Hispanic Heritage Month, Teva Neuroscience, Inc., marketers of the once-daily Parkinson’s disease (PD) drug AZILECT ® (rasagiline tablets), today announced the launch of the Spanish version of their patient and caregiver resource Web site, azilect.com/espanol. The Spanish Web site was created to provide important information and resources to members of the Hispanic community, living in the U.S., who are affected by PD, an age-related degenerative disorder of the brain.

“Unfortunately, there are not a lot of resources for Spanish-speaking patients dealing with Parkinson’s disease,” said Dr. Ramon L. Rodriguez, director of clinical services at the University of Florida’s Movement Disorders Center. “Even though there is no cure for Parkinson’s, it is important for patients to learn how to live well through a combination of activities and treatments that can help control the symptoms of the disease.”

The Spanish Web site, azilect.com/espanol, is a comprehensive resource that provides important information to help patients and families with the physical and emotional effects of PD. Spanish-speaking visitors will be able to access a wide range of information and resources, including:
• Basic disease information and treatment options
• Signs and symptoms of the disease
• Tips on living well through a combination of treatment, activities, and support
• Downloadable worksheets and links to various other resources
• Caregiver information

Additionally, visitors will have access to a downloadable version of the recently released “Hacia adelante” resource guide. The easy-to-use guide is a useful tool that helps people affected by PD understand more about the disease, learn how to live well despite the diagnosis, and research various treatment options.

“We are pleased to bring these much needed resources to the Spanish-speaking community living in the U.S.,” said Teva Neuroscience product manager, Mike Sheehy. “We believe it is important to provide Spanish-language materials and information that help people manage diseases, such as PD, to this important and growing community.”

Teva Neuroscience is headquartered in Kansas City, MO. For additional information about Teva’s Spanish resources for PD or AZILECT, visit azilect.com/espanol.

Sherri Woodbridge | 09.29.08 | Resources, , , , , | No Comments |

Dancing the Parkie-Polka

It’s been known for a while that singing for a PD patient is not only great therapy emotionally, but helps strengthens the vocal cords, giving the patient better volume while speaking. Now there’s evidence that dancing has proven to be great therapy.

In an article sent out by the NWPF (Northwest Parkinson’s Foundation), Michael Lieb, a sufferer with the disease admits that dancing has “…been a source of great inspiration and a source of hope.”

He says that he has been given “the upper hand” (or could it be said ‘foot’?!) in his fight with PD. He has found great inspiration and hope in getting his feet off the ground and in step with the beat.

According to the article, dancing “may even be more beneficial than regular exercise because music stimulates parts of the brain affected by Parkinson’s disease, and being together forms and important sense of community.”

Mayo Clinic researchers reported that social dancing helps to reduce stress, increase energy, improve strength, and increase muscle tone and coordination.

Parkinson’s patients struggle with various physical conditions associated with the disease. The National Heart, Lung and Blood Institute (NHLBI) says that dancing can lower your risk of coronary heart disease, decrease blood pressure, help you manage your weight, and strengthen the bones of your legs and hips.

The New England Journal of Medicine found that dancing can reduce the risk of Alzheimer’s disease and other forms of dementia in the elderly and it was found that dancing was the only physical activity out of 11 that was associated with a lower risk of dementia, most likely because it engages brain, as well as physical activity.

Dancing has many benefits on brain ‘health’. It increases blood flow to the brain. It creates an atmosphere for socializing which reduces stress, depression, and the feeling of loneliness. It requires the memorization of steps and partnering with someone, providing mental challenges for a healthy brain. Studies have proven that dance may even be more beneficial than regular exercise because music stimulates parts of the brain affected by Parkinson’s disease, and being together forms an important sense of community, as stated above.

After twelve weeks in the class that Lieb participates in, other participants said they didn’t use their walkers much anymore and Lieb stated that dancing has enabled him to perform movements that he didn’t think were possible for him, even before he was diagnosed with Parkinson’s. He feels he’s gained greater flexibility, balance, and a new outlook on life.

Experts believe that as long as dancing is done safely, it certainly can do no harm. So, what are you waiting for? Grab those dancin’ shoes, a partner, put on that favorite ‘record’ and start swingin’!

Sherri

Sixwise.com, “The Health and Benefits of Dancing”

Northwest Parkinson’s Foundation, Issue September 26, 2008, “Dance Therapy Helpful For Parkinson’s Patients”, by Dr. Holly Phillips

End note: I just received this in my email and thought it was very timely:

www.parkinsonsdance.blogspot.com

Sherri Woodbridge | 09.27.08 | Resources, , , , , , , | No Comments |

PJ’s First Opinion Poll… Voice Your Opinion Here!

The following article appeared in the September 26th edition of the NWPF Newsletter. We’d like to ask our audience what they think. So… give us your opinion of this article (in the comment section) after reading it. Thanks! -sherri

Sergey Brin starts blog, tells of Parkinson’s risk

Cnet News - Google co-founder Sergey Brin launched his personal blog on Thursday with some sobering news: he carries a particular genetic mutation that means he’s much more likely than average to get Parkinson’s disease.

The inaugural post on Brin’s blog, too.blogspot.com, is titled “LRRK2″ after the gene that he found carries a mutation called G2019S, which, “while rare even among people with the disease, accounts, in some ethnic groups, for a substantial proportion of familial Parkinson’s,” Brin said in the blog post.

“It is clear that I have a markedly higher chance of developing Parkinson’s in my lifetime than the average person. In fact, it is somewhere between 20 percent to 80 percent, depending on the study and how you measure,” Brin said.

Brin’s mother and her aunt both have Parkinson’s, and recent research has uncovered a genetic link in some cases of the disease, Brin wrote. And through the services of start-up 23andMe, co-founded by his wife, Anne Wojcicki, and Linda Avey, he found that he carries the same mutation. The research is still early, though, he said. And he had an optimistic take on the news.

“I feel fortunate to be in this position. Until the fountain of youth is discovered, all of us will have some conditions in our old age, only we don’t know what they will be. I have a better guess than almost anyone else for what ills may be mine–and I have decades to prepare for it,” Brin said. And, he added, “research into LRRK2 looks intriguing (both for LRRK2 carriers and potentially for others).”

Brin said the knowledge gives him some power.

“I know early in my life something I am substantially predisposed to. I now have the opportunity to adjust my life to reduce those odds (e.g. there is evidence that exercise may be protective against Parkinson’s). I also have the opportunity to perform and support research into this disease long before it may affect me,” he said. “And, regardless of my own health, it can help my family members, as well as others.”

Sherri Woodbridge | 09.26.08 | Uncategorized, , , | No Comments |

Restless Leg Syndrome Revisited

If you’ve got Parkinson’s Disease, chances are you’ve experienced Restless Leg Syndrome and if you’ve experienced Restless Leg Syndrome, chances are, like me, you’ve spent a good part of the wee hours of the night walking the floor and feeling as if your nerves are going to jump right out of your limbs.

Did you know that Restless Leg Syndrome, or RLS, affects at least 12 percent of the population? According to the RLS Foundation, a patient must meet the four criteria below for proper RLS diagnosis:

You have a strong urge to move your legs, which you may not be able to resist. The need to move is often accompanied by uncomfortable sensations. Some words used to describe these sensations include: creeping, itching, pulling, creepy-crawly, tugging, or gnawing.

Your RLS symptoms start or become worse when you are resting. The longer you are resting, the greater the chance the symptoms will occur and the more severe they are likely to be.

Your RLS symptoms get better when you move your legs. The relief can be complete or only partial but generally starts very soon after starting an activity. Relief persists as long as the motor activity continues.

Your RLS symptoms are worse in the evening especially when you are lying down. Activities that bother you at night do not bother you during the day. http://www.rls.org/Page.aspx?pid=477

While the drugs Requip, Sinemet, Neurontin and Mirapex are the major contenders for treating RLS, I just read that non-drug treatments are becoming widely known among RLS sufferers. Among those are the following suggestions:

  • Since RLS has been known to be found in patients with an iron deficiency, treating the lack of iron can help.
  • Some have found that cutting back and/or eliminating all caffeine is a big help. This includes chocolate, colas with caffeine, coffees, and teas. SORRY!!!
  • Combining medications can make RLS worse. Check with your doctor if you are being treated for high blood pressure, nausea, a cold, allergies, depression or heart conditions.
  • Taking a hot bath before bed can help to control symptoms.
  • Eliminate alcohol intake.
  • Walking, stretching, yoga, massage, acupressure
  • Keeping your mind ‘distracted’ while sitting, by doing needlework, watching a movie, conversing, etc.

RLS can be extremely bothersome, so make sure that anything you may be doing is not contributing to the symptoms you may be experiencing. If you are taking antihistamines, anti-dizzy or ant-nausea medications, antidepressants or certain psychiatric medications, contact your doctor to see if these may be playing a role in your RLS.

RLS is said to be hereditary. If a member in your family begins to experience symptoms similiar to PD, make sure they see a health care professional as soon as possible.

Sherri

Sherri Woodbridge | 09.24.08 | Daily Life, Medication Issues, , , , , , , | No Comments |

PARKINSON’S DISEASE PATIENT AND CAREGIVER’S SURVEY NEEDS YOUR HELP!!!

In 5 minutes or less, your input can help us help others!

We’re creating materials about an upcoming Parkinson’s Disease (PD) clinical study, and we’d like to know how you rate the headlines and designs. This survey is anonymous, so we won’t ask for any identifying information. By clicking on the following link you will be connected to our questions: https://www.surveymonkey.com/s.aspx?sm=_2fbQTKCMj5hJsShlmxJjsWQ_3d_3d.

We appreciate your feedback!

THANKS FOR HELPING US HELP OTHERS!!!

Sherri

Sherri Woodbridge | 09.23.08 | Medication Issues, , , , | No Comments |